EHS and extreme light sensitivity

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EHS and extreme light sensitivity

SuperLaura
Anyone else suffering with this? Like to the point of wearing sunglasses indoors all day and even in the evening?

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Re: EHS and extreme light sensitivity

Karl
Yep. For almost 20 years.

It was the first symptom I noticed.
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Re: EHS and extreme light sensitivity

SuperLaura
Really? What did you do about it?

I have been to eye doctor a few times. The first time they put me on Alrex a type of steroid to remove inflammation. That made my light sensitivity go away completely until I ran out of drops anyways. So it looks like the problem is something else since now the inflammation is completely gone and they say my eyes look fine except for a little dryness. Did you find anything that helped?

I am trying a few different things as I really don’t want to go back on the drops as long time use can cause other problems...
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Re: EHS and extreme light sensitivity

Plop Plop
Are you in any sort of radiations?

The eye is a radiation detector by design and is 3 times as sensitive to rads as any other organ. It is completely rebuilt every 3 days apparently.

The problem I have with my eyes is that if I go into MWs every thing goes kind of trippy bright  and sort of white bright.  I take it as a warning and get the hell out of there.

Have you read about re-dedifferentiation? ref Electromagnetic Man
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Re: EHS and extreme light sensitivity

Karl
In reply to this post by SuperLaura
I tried a lot of things before reading about ES a couple of years ago. Actually, the first memories I have of it were closer to 25 years ago.

I got no benefit from sleep masks. The first things I found that helped were:

- "Indoor/outdoor" sunglasses that are very slightly mirrored. They helped more than I expected for how transparent they are. I wore Elvex SG-200 safety glasses (which have that coating and look like sunglasses) at my old job and I still wear them when biking.

- Putting a wet washcloth over my eyes. (I found that accidentally when I came back once from a long bike ride and cleaned up and went to rest. The sun was shining into my window, so I grabbed a damp towel out of my hamper and put it over my eyes, which made a big difference. I wasn't sleeping well at the time, so it was to hard to ignore and I kept using it for years before reading about ES.)

I think for me it's probably ES-related, but it sounds as though you're not sure if your sensitivity is. The damp cloth is easy to try and won't hurt anything, so that might narrow it down.
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Re: EHS and extreme light sensitivity

Fog Top
In reply to this post by SuperLaura
I, too, am on the somewhat extreme side of light sensitivity.  It became evident at a young age while  growing up in sunny Florida.  A few rooms in my house make me want a pair of sunglasses on sunny days.  I usually wear those big plastic blue-light blocking glasses when watching TV or on the computer as my vision goes blurry quickly if I don't.  I find those blue light-blocking glasses comfortable outside, but when removing them it takes a little while for the color vision to go back to normal after wearing them outdoors.  
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Re: EHS and extreme light sensitivity

Jinna
I don't know if all light sensitivities are the same.

In my case it happened everytime I had some active infection, a virus or babesiosis, for example.

I guess you gotta tell us if you react to all lights, or only with fluorescent lights? Or economy lights? Or incandescent bulbs? Or sunlight?

I think infections make you very reactive to sunlight, in my experience.
My case was extreme: I would throw up after a few minutes under sunlight.

Even in cloudy days, it was not easy.
Once I could find which pathogen was causing that, and killed it, well, I did not have that problem back.


ES-caused sensitivity happens more against fluorescent /light saving bulbs.
Most people in the lyme forums feel like dying in places with fluorescent lights + wifi + loaded with cell phones.